UK Kidney Cancer Pipelines
Let's face it, you wouldn't want to be seriously ill in this country would you, well at least not without a degree or phd in pipeline engineering.
This diagram below somehow (and I've yet to figure it out) explains the process of getting drugs if they are...
and I quote ..
..
Non Tariff Non-NICE (NTNN) Medicines.
These folks love their acronyms, WYPCOCGM and NECDAG for example...
You're lost before you even start.
This is what happens with design by committee, too many people poking their heads into the mix creating a process that only makes sense to the collective brain that created it.
These groups have created a process flow map that frankly wouldn't look out of place in a chemical plant.
To fight your way around this map you'd have to really know the ins and outs of how the "Exceptional Circumstances" procedures work.
It's little wonder that UK Kidney Cancer patients are struggling to get Sutent on the NHS.
And I use the words "Fight your way around" instead of "find your way around" for good reason, it's clearly one of those situations where the process is made so complicated to deliberately put people off from even applying.
Now you can kind of forgive a corporate for making a complaints process arduous to put the customers off (well not forgive but partially understand), but to do this where human life is at stake is unforgivable.
What this does is suck all the humanitarian aspects out of the process, which makes injecting them back in hard, if not impossible.
I guess that's the intention.
Do they take into account age? if the person has a family? the stress? ...
Can't see that on the pipeline myself, but then again it's so darn complicated that it's tough to find the end-point.
I'd offer a prize for the person that can find where it starts an where it ends, however some "clever" bod from the PCTs will probably do it...
they seem to be good at that.
Oh how I wish they would think of the people at the end of the chain i.
e.
the patients.
You have to be grateful that there are folks out there who are willing to hand hold patients struggling through this process.
The Fight For Life campaign spearheaded by Rose Woodward is a point in case.
We've created a link on the front page ofKidneyCancerResource and I hope this helps a little.
Maybe I'm being unreasonable and I should see the other point of view i.
e.
The PCTs, but they do make it so hard to be objective.
This diagram below somehow (and I've yet to figure it out) explains the process of getting drugs if they are...
and I quote ..
..
Non Tariff Non-NICE (NTNN) Medicines.
These folks love their acronyms, WYPCOCGM and NECDAG for example...
You're lost before you even start.
This is what happens with design by committee, too many people poking their heads into the mix creating a process that only makes sense to the collective brain that created it.
These groups have created a process flow map that frankly wouldn't look out of place in a chemical plant.
To fight your way around this map you'd have to really know the ins and outs of how the "Exceptional Circumstances" procedures work.
It's little wonder that UK Kidney Cancer patients are struggling to get Sutent on the NHS.
And I use the words "Fight your way around" instead of "find your way around" for good reason, it's clearly one of those situations where the process is made so complicated to deliberately put people off from even applying.
Now you can kind of forgive a corporate for making a complaints process arduous to put the customers off (well not forgive but partially understand), but to do this where human life is at stake is unforgivable.
What this does is suck all the humanitarian aspects out of the process, which makes injecting them back in hard, if not impossible.
I guess that's the intention.
Do they take into account age? if the person has a family? the stress? ...
Can't see that on the pipeline myself, but then again it's so darn complicated that it's tough to find the end-point.
I'd offer a prize for the person that can find where it starts an where it ends, however some "clever" bod from the PCTs will probably do it...
they seem to be good at that.
Oh how I wish they would think of the people at the end of the chain i.
e.
the patients.
You have to be grateful that there are folks out there who are willing to hand hold patients struggling through this process.
The Fight For Life campaign spearheaded by Rose Woodward is a point in case.
We've created a link on the front page ofKidneyCancerResource and I hope this helps a little.
Maybe I'm being unreasonable and I should see the other point of view i.
e.
The PCTs, but they do make it so hard to be objective.
Source...